Weblinks for chronic disease patients, relatives and patients advocates

Information Services and Patient Organisations

Oncology and Hematology

Germany

Deutsche Krebshilfe
“Help. Research. Inform.” Projects to improve prevention, early detection, diagnosis, therapy, medical aftercare and psychosocial care, including cancer self-help.

Krebsratgeber
Information on patient organisations for cancer patients and relatives.

Switzerland

Krebsliga
The Krebsliga advocates a world in which fewer people contract cancer, fewer people suffer and die from the consequences of cancer, more people are being cured of cancer, and people affected and their families receive care and help at all stages of the disease and death.


Cardiovascular Diseases

Germany

Deutsche Herzstiftung
One of the main tasks of the Deutsche Herzstiftung is to inform patients independently about heart diseases: Which therapies make sense and which treatment methods can no longer be recommended today? The Deutsche Herzstiftung is also known for its large, wide-ranging information campaigns and important research projects funded by the Heart Foundation in the past in the field of cardiovascular diseases.

Switzerland

Schweizerische Herzstiftung
Non-profit organization active in the field of cardiovascular diseases that promotes research as well as education and prevention.


CNS

Germany

Deutsche Gesellschaft für Neurologie
Information on contact persons and patient organizations for patients with diseases of the central nervous system (Deutsche Gesellschaft für Neurologie).

Switzerland

Schweizerische Neurologischen Gesellschaft
Patient information of the Schweizerischen Neurologischen Gesellschaft.


Musculosceletal Diseases

Germany

Bundesselbsthilfeverband für Osteoporose e.V.
Patient information, referral to self-help groups.

Deutsche Gesellschaft für Muskelkranke e.V.
Advice and information for affected persons and their relatives; promotion of research into the various muscular diseases and health policy representation of muscular patients.

Deutsche Muskelstiftung
The purpose of the foundation is to promote science and research in the field of muscular diseases, in particular “spinal muscular atrophy”, public relations work and support for those affected and their families.

Switzerland

Schweizerische Muskelgesellschaft muskelkrank & lebensstark
Advice and support for patients and their relatives, contact and self-help groups, leisure and camp activities, services provided by the muscle centres, information and training opportunities for patients, institutions and specialists, information, press and public relations work.


Endocrine, Metabolic and Genetic Disorders

Germany

Deutsche Gesellschaft für Endokrinologie
Self-help groups, patient associations, information services.

diabetesDE-Deutsche Diabetes Hilfe
Health organization to support people with diabetes, their relatives and patients at risk.

Bund diabetischer Kinder und Jugendlicher e. V.
Deutscher Diabetiker Verband e. V.
Patient information; social, medical and psychological support for patients with diabetes.

Switzerland

Schweizerische Gesellschaft für Endokrinologie und Diabetologie
Patient information, training programs.


Ophthalmology

Germany

Bundesverband AUGE e.V.
The Bundesverband AUGE e.V. supports eye patients and their relatives in coping with their problems and answers questions and concerns about chronic eye diseases.

Switzerland

Schweizerische Ophthalmologische Gesellschaft
Patient information of the Schweizerischen Ophthalmologischen Gesellschaft.


Immunology and Inflammation

Germany

dsai e.V. Patientenorganisation für angeborene Immundefekte
dsai is committed to early diagnosis, appropriate therapy, nationwide care, public information and to those affected and their relatives.

Deutsche Rheuma-Liga Bundesverband e.V.
Offers of help and self-help for those affected, the education of the public and the representation of the interests of rheumatics patients towards politics, health care and the public as well as the promotion of research are priority tasks of the organisation

Switzerland

Rheumaliga Schweiz
The Rheumaliga Schweiz is a non-profit organization dedicated to helping over two million people with rheumatism throughout Switzerland. It supports healthy people in maintaining their health through prevention and information. People with impaired health receive help through medical, therapeutic, social and preventive measures.


Dermatology

Germany

Deutsche Dermatologische Gesellschaft
Information provided by German-speaking dermatologists.

Switzerland

Schweizerische Gesellschaft für Dermatologie und Venerologie
Information services.


Infectious Diseases

Germany

Robert Koch Institut
Federal Institute for Infectious Diseases and Non-Communicable Diseases.

Borreliose und FSME Bund Deutschland
Non-profit patient organisation for patients and those seeking advice.


Gastroenterology

Germany

Deutsche Gesellschaft für Gastroenterologie, Verdauungs- und Stoffwechselkrankheiten
Overview of non-profit associations, institutions and self-help associations according to specific disease.

Gastro-Liga
The Gastro-Liga – Deutsche Gesellschaft zur Bekämpfung der Krankheiten von Magen, Darm und Leber sowie von Störungen des Stoffwechsels und der Ernährung e.V. – fights against diseases of the digestive organs. Recognized physicians support the work of the Gastro-Liga and inform about prevention, recognition and treatment.

Switzerland

Magendarmliga Schweiz
The Magendarmliga Schweiz has the goal of developing and disseminating neutral, up-to-date and reliable information on diseases of the gastrointestinal tract.


Genitourinary Disorders

Germany

Urologenportal-Die Seiten der Deutschen Urologie
The PatientenAkademie der Deutschen Gesellschaft für Urologie e.V. has compiled a link list with self-help groups and patient organisations. Patients receive current information as well as contact addresses.

Switzerland

Swiss Urology-Schweizerische Gesellschaft für Urologie
Information about diseases, treatment techniques as well as alarm symptoms, patient rights, information sheets, etc.


Respiratory Diseases

Germany

Lungeninformationsdienst (HelmholtzZentrum München, Deutsches Forschungszentrum für Gesundheit und Umwelt)
Information regarding self-help groups.

Deutsche Atemwegsliga e.V. In der Deutschen Gesellschaft für Pneumologie
Information services.

Switzerland

Lungenliga
The Lungenliga advises and cares for people with lung and respiratory diseases, so that they can live as symptom-free and independent as possible and achieve a higher quality of life.

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