Supporters by signed Letter of Support (LoS): 338
| SUPPORTER | COUNTRY | CONTACT |
|---|---|---|
| Researchers and research institutes from hospitals and academic centers (208) | ||
| Aachen-Maastricht Institute for Biobased Materials | Germany | Stefan Jockenhövel |
| ART-TG Inserm US35 | France | Anne Galy |
| Assistance Publique Hopitaux de Paris (AP-HP) | France | Sébestien Maury |
| ASST Gaetano Pini-CTO | Italy | Francesco Laurelli |
| ASST Papa Giovanni XXIII | Italy | Martino Introna |
| Aston University | United Kingdom | Ivan Wall |
| ATIP Avenir, Dr A FOUDI | France | inserm france |
| Azienda Ospedaliera Universitaria Integrata Verona | Italy | Mauro Krampera |
| Azienda ospedaliera Universitaria Senese | Italy | Alessandra Renieri |
| Banc de Sang i Teixits (BST) | Spain | Sergio Querol |
| BARUCH PADEH Medical Center, Poriya | Israel | Arnon Blum MD |
| Biodonostia Health Research Institute | Spain | Ander Izeta |
| Biomedical Research Foundation of the Academy of Athens (BRFAA) | Greece | Eleni Katsantoni |
| BioMeditech | Finland | Minna Kellomaki |
| Biozentrum Universität Würzburg | Germany | Thomas Dandekar |
| Bone Marrow Transplantation Unit, Children’s Hospital Agia Sophia | Greece | Evgenios Goussetis |
| Bone Marrow Transplantation Unit, George Papanicolaou Hospital | Greece | Evangelia Yannaki |
| BSRC Alexander Fleming | Greece | Maria Tsoumakidou, George Kollias |
| Cambridge Biorepository for Translational Medicine | United Kingdom | Kourosh Saeb-Parsy |
| Cancer Research Institute Biomedical Research Center | Slovakia | Jan Lakota |
| Carlos III Health Institute Madrid | Spain | Manuel Posada |
| Casa Sollievo della Sofferenza IRCCS | Italy | Giuseppe Merla |
| Central Hospital of Southern Pest | Hungary | Gergely Krivan |
| Centre for Haematology - Division of Investigative Science | United Kingdom | Jane Apperley |
| Centro Cardiologico Monzino; IRCCS | Italy | Maurizio Pesce |
| Charité | Germany | Philipp Enghard |
| Charité | Germany | Christine Goffinet |
| CHU Rouen | France | Olivier Boyer |
| CHU Saint Louis Paris | France | Jérôme Larghero |
| CIMA Universidad de Navarra | Spain | Juan R. Rodriguez-Madoz |
| Clinica Universitaria de Navarra | Spain | Felipe Prósper |
| Clinical Center of Onco-Hematology University Paris Sud Hospital | France | Ali Turhan |
| CNRS | France | Aurélie Mahalatchimy |
| Collège de France | France | Hugues de Thé |
| CRCINA | France | Marc GREGOIRE |
| CRTI | France | Cristina Cuturi |
| CRTI | France | Emmanuel Donnadieu |
| CURAM | Ireland | Thomas Ritter; Abhay Pandit |
| Cyprus Institute of Neurology and Genetics | Cyprus | Marina Kleanthous |
| Cyprus Institute of Neurology and Genetics (CING) | Cyprus | Kleopas A. Kleopa |
| DANMARKS TEKNISKE UNIVERSITET | Denmark | Morten Nielsen |
| Department of Industrial Engineering, University of Trento | Italy | Antonella Motta |
| Deutsche Gesellschaft für Immunologie (DGfI) | Germany | Michael Lohoff |
| Deutsches Krebsfrschungszentrum (DKFZ) | Germany | S. Eichmüller / M. Baumann, J.Puchta |
| Deutsches Rheuma Forschungszentrum (DRFZ) | Germany | Andreas Radbruch |
| DRFZ | Germany | Andreas Hutloff |
| DRFZ - Therapeutic Gene Regulation | Germany | Mir-Farzin Mashreghi |
| Erasmus MC Rotterdam | Netherlands | Sjaak Philipsen |
| ETH Zurich - Lab of Applied Mechanobiology | Switzerland | Viola Vogel |
| EXPERTISSUES European Instiute of Excellence for Tissue Engineering and Regenerative Medicine | Portugal | Rui Luis Goncalves dor Reis |
| Ferrara University | Italy | Roberto Gambari |
| Fondazione IRCCS Istituto Neurologico Carlo Besta | Italy | Gaetano Finocchiaro |
| Fondazione IRCCS Istituto Neurologico Carlo Besta | Italy | Fabrizio Tagliavini |
| Fondazione Pisana per la Scienza | Italy | Leopoldo Laricchia |
| Fondazione Poliambulanza CREM | Italy | Alessandro Triboldi |
| Forskning - Region Hovedstaden CCIT | Denmark | Inge Marie Svane |
| Fraunhofer-Institute for Silicate Research (ISC) - Fraunhofer Translational Center Regenerative Therapies (TLC-RT) | Germany | Oliver Pullig, Marco Metzger |
| Fundacio Privada Institut d'Investigacio Oncologica de Vall-Hebron | Spain | Alena Gros |
| Galliera Hospital | Italy | Domenico Coviello |
| General Hospital of Athens | Greece | Ersi Voskaridou |
| Genyo | Spain | Francisco Martin Molina |
| Granada Health Technology Park PTS Granada | Spain | Lourdes Nuñez Müller |
| Gustave Roussy Cancer Campus | France | J.H. Bourhis |
| Hacettepe University | Turkey | Meral Özgüç |
| Helmholtz Zentrum München | Germany | Micha Drukker |
| Helmholtz Zentrum München | Germany | Heiko Lickert |
| HiLIFE Helsinki Institute of Life Science | Finland | Tomi Mäkelä |
| Hopital Européen Georges Pompidou (HEGP) | France | Philippe Menasché |
| Hopital Necker - Enfants Malades | France | Marina Cavazzana |
| Hopital Saint Louis | France | Jerome Larghero |
| Hospital Universitario La Paz Infantil | Spain | Antonio Perez Martinez |
| Hospital Universitario Virgen del Rocio | Spain | Jose Antonio Perez Simon |
| IDIBELL | Spain | Gabriel Capellá |
| IIS Aragon Foundation | Spain | Julian Pardo |
| IiSGM | Spain | Rafael Correa |
| IMP - Research Institute of Molecular Pathology | Austria | Elly Tanaka |
| Imperial College | United Kingdom | Jane Apperley |
| Imperial College London | United Kingdom | Gabor Foldes |
| Imperial College London | United Kingdom | Sian Harding |
| INGESTEM/IPSC Haplobank French national IPSC Infrastructure | France | Annelise Bennaceur Griscelli |
| INSERM | France | Olivier Boyer |
| INSERM | France | Yves Levy |
| INSERM Neuroscience Paris Seine research centre | France | Hervé Chneiweiss |
| INSERM, Cochin Institute | France | Raphael Scharfmann |
| INSERM, Institut du Fer à Moulin | France | Matthias Groszer |
| INSERM/Nantes University, The Center for Research in Transplantation in Immunology | France | Régis Josien |
| Institut National du Cancer | France | Norbert Ifrah |
| institut paoli calmettes | France | CHABANNON Christian, MFARREJ Bechara, Elodie Kerjean |
| Institute for Bioengineering of Catalonia (IBEC) | Spain | Josep Samitier |
| Institute for Bioengineering of Catalonia (IBEC) | Spain | Elisabeth Engel |
| Institute for Clinical and Experimental Medicine | Czech Republic | Frantisek Saudek |
| Instituto de Investigación Sanitaria Gregorio Marañón | Spain | Marjorie Pion |
| IRCCS Ca' Granda Ospedale Maggiore | Italy | Monica Sciacco |
| IRSN - Institut de radioprotection et de sûreté nucléaire | France | Alain Chapel |
| I-Stem | France | Marc Peschanski |
| I-STEM/INSERM | France | Marc Peschanski |
| Istituto Giannina Gaslini Paediatric Hospital | Italy | Alberto Martini |
| Istituto Scientifico Romagnolo per lo Studio (IRST) | Italy | Giovanni Martinelli |
| IZI Fraunhofer Leipzig | Germany | Ulrike Köhl, Tradler |
| Joseph Itskovitz | Israel | Joseph Itskovitz |
| Karolinska Inst. Stockholm | Sweden | Ola Winqvist |
| Karolinska Institutet, Stockholm/Sweden | Sweden | Hans-Gustaf Ljunggren |
| Kemijski inštitut | Slovenia | Roman Jerala, Mojca Bencina |
| King's College London | United Kingdom | Graham Lord |
| King's College London | United Kingdom | Giovanna Lombardi |
| Klinikum der Universität München | Germany | Michael von Bergwelt |
| Leibniz Gemeinschaft | Germany | Andreas Radbruch |
| Leiden University Chair Leiden Gene Therapy Platform | Netherlands | Frank Staal |
| Leiden University Medical Center (LUMC) | Netherlands | A.J. Rabelink |
| Leiden University Medical Center, Department of Hematology | Netherlands | Fred Falkenburg, Mirjam Heemskerk |
| Linkoping University | Sweden | Johan Hyllner |
| Lorenza Lazzari | Italy | Lorenza Lazzari |
| LUNDS UNIVERSITET | Sweden | Malin Parmar |
| Mario Negri Institute for Pharmacological Research | Italy | Giuseppe Remuzzi |
| MDC - Max-Delbrück-Center for Molecular Medicine | Germany | Holger Hoff |
| Medical School, University Athens | Greece | George Kollias |
| Medical University Gdansk | Poland | Piotr Trzonkowski |
| Medical University Vienna (bioinformatic) | Austria | Arndt von Haeseler |
| Medizinische Hochschule Hannover | Germany | Robert Zweigerdt |
| MIT Management Sloan School | United States | Mark Trusheim |
| National Research Council Canada | Canada | Lakshmi Krishnan |
| National University of Ireland - REMEDI | Ireland | Timothy O'Brien, Thomas Ritter |
| Nederlands Kanker Instituut Amsterdam | Netherlands | John Haanen |
| Netherlands National Institute for Public Health and the Environment | Netherlands | Jan van Benthem, Nick Beijer |
| NIBRT | Ireland | Niall Barron |
| NIBRT - National Institute for Bioprocessing Research and Training | Ireland | Shada Warreth |
| OSLO UNIVERSITETSSYKEHUS HF | Norway | Karl-Johann Malmberg |
| Ospedale Policlinico San Martino | Italy | Daniela Pende |
| Paracelsus Medizinische Privatuniversität | Austria | Dirk Strunk |
| Parker Institute for Cancer Immunotherapy | United States | Jeffrey Bluestone |
| Raboud UMC | Netherlands | Mangala Srinivas |
| Radboud UMC, Nijmegen | Netherlands | Jolanda de Vries |
| Rambam Medical Center | Israel | Rafael Beyar |
| Regensburger Centrum für Interventionelle Immunologie c/o Universitätsklinikum Regensburg | Germany | Philipp Beckhove |
| Sabanci University | Turkey | Godze Ince |
| Sabanci University | Turkey | G.Ince, Sirin Tekinay |
| Sabanci University, Nanotechnology Research Center (SUNUM) | Turkey | G. Ince, Fazilet Vardar Sukan |
| San Raffaele Scientific Institute | Italy | Lorenzo Piemonti |
| Scottish National Blood Transfusion Service | United Kingdom | Marc Turner |
| Sheba Medical Center | Israel | Dr Yaacov Richard Lawrence |
| Skeletal Biology and Engineering Research Center | Belgium | Frank Luyten, Liesbet Geris, Ioannis Papantoniou |
| SNBTS Tissues | United Kingdom | Jo Mountford |
| Spanish National Research Council | Spain | Daniel Bachiller |
| Stem Cell Institute Leuven | Belgium | Catherine Verfaillie, Christina Vochten |
| Technische Universität Dresden | Germany | Martin Bornhäuser |
| Tecnico Lisboa | Portugal | Joaquim Cabral |
| The Leibniz Research Laboratories for Biotechnology and Artificial Organs (LEBAO) at the Hannover Medical School (MHH) | Germany | Ulrich Martin |
| UCL | United Kingdom | Stephen Hart |
| UCL | United Kingdom | Jonathan Knowles |
| UCL Great Ormond Street Institute of Child Health | United Kingdom | Waseem Qasim |
| UCL Institute of Ophthalmology | United Kingdom | Robin Ali |
| Umeå university | Sweden | Amir Sherif |
| Uniklinik RWTH Aachen | Germany | Wolfgang Wagner |
| Uniklinikum Salzburg | Austria | Katharina Schallmoser |
| UNIVERSITÀ DEGLI STUDI DI PADOVA | Italy | Nicola Elvassore |
| UNIVERSITA DEGLI STUDI DI TORINO | Italy | Annalisa Buffo |
| Università degli Sudi di Perugia | Italy | Francesca Fallarino |
| Università G. d'Annunzio Pescara | Italy | Mauro Di Ianni |
| Universitair Ziekenhuis Brussel | Belgium | Bart Neyns |
| Universitair Ziekenhuis Gent | Belgium | Tessa Kerre |
| Universität Heidelberg, Immunologie | Germany | Stefan Meuer |
| Universitätsklinik für Kinder und Jugendmedizin Tübingen | Germany | Rupert Handgretinger |
| Universitätsklinikum Essen Institut für Transfusionsmedizin | Germany | Bernd Giebel |
| Universitätsklinikum Freiburg | Germany | Toni Cathomen |
| Universitätsklinikum Münster Klinik für Kinder- und Jugendmedizin | Germany | Claudia Rössig |
| Universitätsklinikum Würzburg | Germany | Nurcan Üçeyler |
| Universitätsklinikum Würzburg | Germany | Hermann Einsele |
| Universitätsklinikum Würzburg - Lehrstuhl Tissue Engineering und Regenerative Medizin (TERM) | Germany | Joachim Nickel, Daniela Zdzieblo, Gudrun Dandekar |
| Universitätsmedizin Göttingen (UMG) Institut für Pharmakologie und Toxikologie | Germany | W.-H. Zimmermann |
| Universitätsmedizin Mannheim | Germany | Adelheid Cerwenka |
| Université Libre de Bruxelles | Belgium | DELPORTE Cédric |
| Université Libre de Bruxelles | Belgium | Rachel Leproult |
| University College London | United Kingdom | Julie Daniels |
| University College London, Institute of Immunity and Transplantation | United Kingdom | Hans Stauss |
| University Hospital Zurich | Switzerland | Steve Pascolo |
| University Medical Center Groningen (UMCG) | Netherlands | Bart Scheerder |
| University of Birmingham | United Kingdom | Philip Newsome |
| University of Birmingham | United Kingdom | Steven Lee |
| University of Bologna; Dept. of Pharmacy and Biotechnology | Italy | Giampaolo Zuccheri / Francesco Ubertini |
| University of Brighton | United Kingdom | Matteo Santin |
| University of Bristol | United Kingdom | Paolo Madeddu |
| University of Bristol | United Kingdom | Moin Saleem |
| University of California San Francisco | United States | Jeffrey Bluestone |
| University of Cambridge | United Kingdom | Cedric Ghevaert |
| University of Cambridge | United Kingdom | Stefano Pluchino |
| University of Cambridge | United Kingdom | Rodger Barker |
| University of Granada Tissue Engineering Group of the Histology Department | Spain | Antonio Campos |
| University of Magdeburg | Germany | Carsten Thoms, Heike Walles |
| University of Manchester | United Kingdom | Sue Kimber |
| University of Milano | Italy | Elena Cattaneo |
| University of Newcastle | United Kingdom | Che Connon |
| University of Oxford/Nuffield Department of Surgical Sciences, Transplantation Research Immunology Group (TRIG) | United Kingdom | Joanna Hester |
| University of Oxford/Nuffield Department of Surgical Sciences, Transplantation Research Immunology Group (TRIG) | United Kingdom | Fadi Issa |
| University of Oxford/Nuffield Department of Surgical Sciences, Transplantation Research Immunology Group (TRIG) | United Kingdom | Kathryn Wood |
| University of Southampton | United Kingdom | Richard Oreffo |
| University of Trento, CIBIO | Italy | Alessandro Quattrone, Silvia Holler |
| University of Verona | Italy | Alessandra Maria Bossi |
| University of Zaragoza/ IIS Aragon Foundation | Spain | Julian Pardo |
| University of Zurich - CABMM | Switzerland | Silke Kalchofner-Mark |
| UTCG, CHU de Nantes | France | Brigitte Dreno, Florence Vrignaud |
| UZA - University Hospital Antwerp | Belgium | Evelien Smits, Zwi Berneman |
| Vall d’Hebron Institut de Recerca (VHIR) | Spain | Mariona Esquerdo Barragan, Estel Gil, Arnal Arasa, Laia |
| Vilnius University | Lithuania | Birute Tumiene |
| WEIZMANN Institute of Science | Israel | Yosef Yarden |
| Weizmann Institute of Science | Israel | Benny Geiger |
| Wroclaw Medical University | Poland | Marek Ussowicz |
| Wyss Institute, Harvard University | United States | Don Ingber |
| Wyss Zurich | Switzerland | Simon Hoerstrup, Roland Sigwart |
| Supporters from pharma, biotech and technology companies (72) | ||
| Alacris Theranostics GmbH | Germany | Hans Lehrach |
| Apceth Biopharma | Germany | Christine Günther |
| ASPHALION S.L. | Spain | Núria Romero Carol |
| Avantea srl | Italy | Cesare Galli |
| Bayer AG | Germany | Karl Ziegelbauer |
| BD Life Sciences Biosciences | United States | Sylvia Unger, Gert Boschmann |
| Be the Partner, Inc | United States | Ryan Norris |
| Biogelx | United Kingdom | Mitch Scalan |
| BioLamina, Sundbyberg Sweden | Sweden | Kristian Tryggvason |
| BrainStorm Cell Therapeutics Ltd | Israel | Uri Yablonka, Sinaya Vaisburd |
| Cambridge Innovation Technologies Consulting Ltd | United Kingdom | Luigi Occhipinti |
| Captain T Cell | Germany | Felix Lorenz |
| Celyad | Belgium | David Gilham |
| Cenya Imaging B.V. | Netherlands | James Simon |
| co.don | Germany | Giulietta Roel |
| COMECER S.p.A. | Italy | Marco Fadda |
| COMECER S.p.A. | Italy | Giacomo Guidi |
| Dolon Ltd | United Kingdom | Adam Hutchings |
| Dompè | Italy | Marcello Allegretti |
| EPOS – Iasis Research and Development Ltd | Cyprus | Andreani Odysseos |
| Euroclone | Italy | Cristina Zanini |
| Family Cord Blood Bank Hemafund | Ukraine | Oksana Malanchuk, Yaroslav Issakov |
| GE Healthcare Life Sciences | Sweden | Lorenz Mayr, Daria Donati |
| GenoSafe | France | Carole Masurier |
| Harbour Antibodies BV | Netherlands | Frank Grosveld |
| Heraeus | Germany | Andrew Williamson |
| IBET | Portugal | Manuel Carrondo |
| IBM | Israel | Michal Rosen-Zvi |
| IPSIRIUS | France | Université Paris SUd, Inserm Transfert |
| KadimaStem | Israel | Michel Revel |
| Karuna GCT | Spain | Monica Castresana |
| LEITAT Managing Technologies LTD | Spain | Manel Balcells Diaz |
| Leucid Bio | United Kingdom | John Maher |
| LIFT Biosciences | United Kingdom | Alexander Blyth |
| Lonza | Switzerland | Nina Bauer, Uwe Gottschalk, Birgit Nelsen-Salz, Andreas Weiler |
| MEDISON Pharma LTD | Israel | Gil Gurfinkel VP Corporate Development |
| Molmed SpA | Italy | Luca Alberici, Riccardo Palmisano |
| Mundipharma Research | United Kingdom | Naheed Mirza |
| NovaMechanics | Cyprus | Antreas Afantitis |
| Novartis Pharma GmbH | Germany | Ulrike Haus, Alexandra Skorupa |
| Novo Nordisk Foundation Center for Stem Cell Biology | Denmark | Henrik Semb |
| Onyel Biotech S.r.l. | Italy | Onelia Gagliano |
| Pfizer Pharma GmbH | Germany | Peter-Andreas Löschmann |
| Pirche AG | Germany | Thomas Klein |
| Poietis | France | Bruno Brisson |
| Promega | Germany | Peter Quick, Thomas Kluenner, Antje Gent |
| Proteona GmbH | Germany | Andreas Schmidt |
| RAFA Laboratories LTD | Israel | Amir Levin |
| Regen Health Solutions | Italy | Pier Maria Fornasari |
| Resbiomed Technologies | Bulgaria | Alexander Angelov |
| RHENIUM LTD | Israel | Dror Israeli CEO |
| S&P BRAIN | Italy | Annalisa Buffo |
| Sanofi-Aventis GmbH | Germany | Joachen Maas |
| Sartorius | Germany | Marin Albersdoerfer |
| SciMed | Czech Republic | Eva Sykova |
| Scimed | Czechia | Jakub Sadílek |
| Siemens Healthineers GmbH | Germany | Christian Wolfrum |
| Sistemic | United Kingdom | David Mallinson |
| Stemcell technologies | United Kingdom | Allen C. Eaves, Cambridge |
| Syncona | United Kingdom | Martin Murphy (CEO), Dominic Schmidt (Partner) |
| TAROM Innovative Technologies LTD | Israel | Zvi Barr Chairman |
| Termis World | United States | Rui L. Reis |
| Tessa Therapeutics | Singapore | John Connolly |
| Teva Pharmaceuticals | Israel | Neta Zach |
| Thermofisher | United States | Roland Leathers |
| ThermoFisher SCIENTIFIC | United States | Bryan Poltilove |
| Tissue Click Ltd | United Kingdom | Anna Guildford |
| TRAKCEL LIMITED | United Kingdom | Matthew Lakelin |
| Valicare GmbH | Germany | Hans-Georg Eckert, Ellen Sons-Brinkmann, Ines Schneider |
| Verigraft | Sweden | Petter Björquist |
| ViveBiotech | Spain | Jose Manuel Franco |
| Yposkesi | France | Sophie Blondel |
| Initiatives, consortia and network (34) | ||
| Andalusian Initiative for Advanced Therapies | Spain | Roke Inaki Oruezabal Guijarro |
| Austrian Cluster for Tissue Regeneration | Austria | Heinz Redl |
| Centre for Advanced Medical Products (CAMP) | Sweden | Paul Kingham |
| CINECA | Italy | Sanzio Bassini |
| Cluster Lombardia for Life Science | Italy | Gabriele Pelissero |
| CVBF | Italy | Giovanni Migliaccio |
| DECHEMA e.V. | Germany | Karin Tiemann |
| EATRIS | Netherlands | Anton Ussi |
| ECRIN (European Clinical Research Infrastructure Network) | France | Jacques Demotes |
| EFPIA (European Federation of Pharmaceutical Industries and Associations) | Belgium | Magda Chlebus / Nathalie Moll |
| ERN BOND | Italy | Luca Sangiorgi |
| EUCOPE | Belgium | Delphine Roulland, Alexander Natz |
| EUHA - European University Hospital Alliance | Spain | Johan Van Eldere |
| F-CRIN French Clinical Research Infrastructure Network | France | Vincent Diebolt |
| FOCIS FCE Europe | Sweden | Ola Winqvist |
| German Stem Cell Network (GSCN) | Germany | Daniel Besser |
| Global Alliance for IPSC Therapies, (GAIT international network) | United Kingdom | Stephen Sullivan |
| hPSCreg - The Human Pluripotent Stem Cell Registry | Germany | Andreas Kurtz |
| iMATCH | United Kingdom | Fiona Thistlewaite |
| Institute for Biomedical Technologies, (CNR) National Research Council, Italy | Italy | Gianluca De Bellis |
| IPLASS - International Placenta Stem Cell Society | Italy | Ornella Parolini |
| Irish Medtech Association Ibec (IMA) | Ireland | Sinead Keogh, Thomas Ritter |
| IRMI - Italian Regenerative Medicine Infrastructure | Italy | Laura Calza |
| Istituti Clinici Scientifici Maugeri | Italy | Silvia Priori |
| Istituto di Ricerca Genetica e Biomedica - CNR | Italy | Edoardo Fiorillo |
| Labex Network Nantes | France | Ignacio Anegon |
| Lombardy Foundation for Biomedical Research | Italy | Marina Gerini |
| Osservatorio Terapie Avanzate | Italy | Francesca Ceradini |
| Piemonte Innovation Cluster, BioIndustry Park S. Fumero | Italy | Fabrizio Conicella |
| Spanish Society for Gene and Cell Therapy - SETGyC | Spain | Angel Raya |
| Spanish Society of Histology and Tissue Engineering | Spain | Miguel Alaminos |
| Termis EU | Austria | Heinz Redl |
| Toscana Life Sciences | Italy | Andrea Frosini, Andrea Paolini |
| VfA | Germany | Siegfried Throm |
| Patients and other non-profit organisation (24) | ||
| ACHSE e.V. (DRK Kliniken Berlin Mitte) | Germany | Christine Mundlos |
| AIBWS (Italian Association for Beckwith-Wiedemann Syndrome) | Italy | Daniela Valle |
| AISK (Italian association of Kabuki syndrome ) onlus | Italy | Sonia D’Ambrosio |
| Alliance for Regenerative Medicine (ARM) | United States | Janet Lybnch Lambert |
| Anthony Nolan Trust | United Kingdom | Alejandro Madrigal / Diana Hernandez |
| AriSLA | Italy | Anna Ambrosini |
| Association Française du Gougerot-Sjögren et des Syndromes Secs | France | Coralie Bouillot |
| Associazione Persone Williams Onlus | Italy | Annalisa Scopinaro |
| Claudia Schmidtke | Germany | Claudia Schmidtke |
| dsai e.V. Patientenoranisation | Germany | Gabriele Gründl |
| EURORDIS | France | Virginie Bros-Facer; Chris Sotirelis |
| Fondazione Paracelso | Italy | Andrea Buzzi |
| Genethon | France | Frederic Revah, Séverine POUILLOT |
| International Patient Organisation for Primary Immunodeficiencies | United Kingdom | Johan Prevot, Julia Nordin |
| International Spinal Research Trust | United Kingdom | Mark Bacon |
| Israel -EU Research and Innovation Directorate | Israel | Hagit Schwimmer, Nili Shalev |
| Italian National Association of People with Rheumatic and Rare Diseases – APMAR | Italy | Antonella Celano |
| Mitocon ONLUS | Italy | Piero Santantonio |
| PTEN Research Foundation | United Kingdom | Maria Whitehead, Siobhain McCullagh |
| Regione Emilia-Romagna | Italy | Laura Calzà, Morena Diazzi |
| Ring 14 Association | Italy | Marco Crimi |
| TEDDY - EU Network Paediatric Clinical Research | Italy | Donato Bonifazi |
| UILDM patient organisation | Italy | Marco Rasconi |
| Unione Italiana Phelan McDermid | Italy | Stella Di Domenico |